Thursday, February 27, 2014

A Punch in the Mama Gut

If you've been following the blog for awhile, you know what a struggle finding a great school for Sammie has been.  We made what felt like a massive leap of faith and pulled her out of public school -- away from the supposed "experts" -- and put her in a private school with no PTs, no OTs, no special education specialists, and she has thrived.  (You can read a little background here).   The problem is, the school is a preschool, that just happened to have a classroom for 4 and 5 year olds, like Sammie, whose parents wanted an extra year before kindergarten.  So, now that this amazing year is nearing an end, we are back to square one.  Back to charter school lotteries, crossed fingers, prayers, IEPs, assessments, and worry.  Back to hoping beyond hope we can find another good fit.  Though at least now, we are armed with a better idea of what works, and what works well, but the bar is set high.  This new school has set the bar amazingly high.  I cannot even put into words how wonderful it has been.  That our little girl's confidence has exploded, that she's made friends.  A best friend even.  One whose hand she holds while they watch their favorite princess movies.  And for the first time, I left a parent-teacher conference crying happy tears because I knew those teachers were taking the time to get my girl (they shared stories of her asking great questions, remembering everything, occasionally "interrupting," (and this from the little girl who the IEP team last year said wouldn't talk in the group) her silliness, her joy, her magic).   It has been an amazing year.

A year that gave us the confidence to seek out private schools for next year, even in this crazy town of pretentiousness and private schools that get hundreds of applications for 50-60 spots.  So that if the charter lotteries don't work out (again), we'd have a plan B.  I called school after school.  I toured school after school.  I looked for schools with missions and environments that promoted community, empathy, and diversity, and we applied.  I was very forthcoming on the applications, about Sammie's cerebral palsy.  I encouraged them to call me to chat ahead of time.  We spent a lot of time investigating our options.  We had a top choice, and it seemed like such a great extension of the school where Sammie is now.  Sammie even did the "student interview," and nailed it.   The psychologist who did the interview/informal assessment remarked about how "astute" and "clever" our girl is, how she was an absolute gift, and said she had no concerns about Sammie succeeding there.  We were so, so optimistic.  So much so that I abandoned a few other private school applications.  

There were a few things that put me "off" a little during the process.   A principal who referred to the "issue of whether they could 'entertain' the idea of having Sammie there."  The probing financial questions.  But I sort of chalked that up to him being an old fart who isn't very PC, and the school being a slightly pretentious southern California private school, like the rest of them.  The thing is - we could afford it.  Yes, it would mean we would be incredibly strapped (because we'd also be funding our own one:one aide, as we have been for years now).  But we could.

And today, I got a call.  The admissions committee met and they decided not to offer Sammie a spot.  She fed me some bullshit company lines about how they were just thinking of Sammie's best interests and thought she'd be better served in a public school because they have the types of resources Sammie might need.  You mean the resources we said we'd provide at our cost?  And "what Sammie needs?"  You mean you don't have good teachers and a caring and nurturing environment?  (And yes, I said that to her).  Because that's what Sammie needs.  I also told her that Sammie would have been an asset to their school who could have taught them all some invaluable lessons in empathy and community and compassion and that it was their loss.  And then I hung up.  Shell shocked.

And then I cried.  I felt punched.  And yes, it truly, truly is their loss.  But the thing is, this was a punch.  And I think I've been so comfortable in our world lately.  With school this year just going so smoothly (not just smoothly but really truly fabulously well), that I haven't felt punched like this in awhile.  And what hurts the most is that this time, I got to take the punch.  I took it, and Sammie doesn't even know that this happened.  But I won't always be able to take the punches for her, and I hate that.  I hate it.  I hate that her best friend, the one she holds hands with and giggles with and is learning right alongside this year, gets to go to this stupid pretentious school (that we were in love with) and Sammie can't.  And for no good reason other than a bunch of close-minded, pretentious assholes.

And I hate that I can't protect her from close-minded pretentious assholes.  I hate that I can't take every single punch for her.

I hate that I can't even count on a school that says its "mission is to create a community of lifelong learners that nurtures students from diverse backgrounds to reach their full potential and inspires them to contribute to the world with confidence, creativity, curiosity, conscience and compassion," will accept my girl.   I call bullshit.  Conscience and compassion, my arse.

I am just so angry.   And sad.  And disappointed.  I hate it.  It was a punch in the gut, and I sobbed all the way home today.  Then I came home, had dinner with my two magical girls (and B) and sat and laughed and giggled and wished I could wish away the pain and disappointment and worry in the pit of my stomach.  Then, I called my mom, and cried some more.  Then I talked to one of my dearest, wisest friends, and she said exactly what I needed to hear:

It's not fair.  The world is full of assholes.  But Sammie is surrounded by loving people who know her value and worth, and she will share those gifts with the world and live a life with purpose.  She already is.  Some people will miss out on that.  Their loss.

Indeed, their loss.  I just wish it didn't sting so much.

The other night, I was laying in my bed with Sammie, and I told her I was tired and frustrated and a little crabby (because Mia had thrown a hundred, I mean, a few, tantrums that night) and Sammie said, "would it help if I lay on you and snuggle you?"  And she did, and it helped.  The crabbiness melted away.

So tonight, I'm going to do what I usually do when those old, familiar, nagging worries or the pissed off "it's not fairs" creep in.  I'm going to go climb into bed with my big girl, let her lay her head on me, and I know . . . it will help.

And for tonight, I'm not going to think about what the loss of "Plan B" means.  I won't think about how this means we are right back into a world of IEPs and stupid formulaic goals and measures and assessments that tell me nothing about my girl's magic.  Nothing. 

Tonight, I'm just going to hold her.  And be glad that this time, I got to take the punch.

Sammie B, there will always be assholes in the world.  There will be people who underestimate you, or who just don't "get" you.  But my girl, know this -- you are amazing, wonderful, incredible you.  You are magic.  And for anyone that doesn't get that, or see that, it is their loss.  For those that see you, that get you, that get to walk this journey with you, we are the most blessed people on earth my love.  And baby, if I could somehow take every disappointment and punch in the gut for you and your sister in life, I would.  In a heartbeat.  That's just part of being a mama.  And I'm lucky to be yours. 

Sneaking into their room in the middle of the night, watching them both sleep so soundly and sweetly, sometimes, that heals me in ways I never knew possible.  And tonight, I hope it will melt away a little of the pain and sting and disappointment and anger over what is truly, truly just not fair


Kate Sherwood said...

I am so sorry. May Plan A work out in the best way possible!

Kate @ BJJ, Law, and Living

Anonymous said...

I just sat here and cried. I'm so damned pissed off for you, too. Nurturing children with diverse background means, I guess, children with two same-sex parents or bi-racial parents - which is wonderful but not nearly the full extent of diversity, is it?

They just embrace the kind of diversity that's in vogue. And one day, you'll see, Sammie's diversity will be in vogue too. It's coming, I know it - because when you see hottie RJ Mitte playing a kick ass character on Breaking Bad - when both the character and the actor have cerebral palsy (as incidental and not relevant AT ALL to the story not even focused on in the least) and the show and Mitte were in the spotlight for past few know that diversity is becoming more inclusive.

You're the very best mom on the planet! Whatever Sammie (and Mia) have to endure in life will be offset so greatly by the foundation you've given them.

You do have a magical little girl. How lucky you are and how much she's given you, in ways you couldn't have imagined. Just look at the depth of your heart's love. :)

-Sky's mommy

Milly said...

That breaks my heart. I grew up in a private school and it's Christian foundation made me fell so lived and at home. My teachers cared about us as their own, we prayed in class, and my disability didn't matter. I didn't feel swallowed up. I also didn't get any special programs public school could've offers, Burr they made them up for me. I hope you can find the perfect niche for her-small schools are so special.