tag:blogger.com,1999:blog-6163766535638871272.post5616173270140056040..comments2023-06-30T04:33:06.354-07:00Comments on The Adventures of My Sammie B and Our Little Family : Medical Mumbo-Jumbo and the JH VisitMomttorneyhttp://www.blogger.com/profile/09783917281663075229noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-6163766535638871272.post-76411638227260079082015-05-30T22:19:21.198-07:002015-05-30T22:19:21.198-07:00Hi, I'm a wife, mother, lawyer, and have a chi...Hi, I'm a wife, mother, lawyer, and have a child who is getting evaluated in very much the same way your daughter was before you rec'd a diagnosis. I found your blog by googling "hypotonia support" and reading your blog certainly helps me to know we're not alone. To see about our little guy, our family blog is www.thekempfamilyadventures.com, and click on the "Grayson's Journey" tab. It's hard enough being a parent, but the constant additional worries are incredibly taxing. Thank you so much for sharing your story. FeliciaThe Kemp Family Adventureshttps://www.blogger.com/profile/06467791841326986901noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-88832569669732218272011-01-06T12:23:41.917-08:002011-01-06T12:23:41.917-08:00I'm just now getting caught up, but the end of...I'm just now getting caught up, but the end of this post made me cry and I'm so glad the whole visit went so well. I kept thinking about it at random moments over the holidays and reminding myself to check back in. I'm really so glad it was positive!LLhttps://www.blogger.com/profile/04431706155081017734noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-75358417515982642962010-12-18T05:38:49.634-08:002010-12-18T05:38:49.634-08:00You are all so lucky to have each other. I wish al...You are all so lucky to have each other. I wish all of the parents of my students with delays were just like you! Love love LOVE your writing, by the way..I'm definitely going to have to go back and catch up when I find a few minutes!Ginahttps://www.blogger.com/profile/16377594606599796121noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-28435041460684502692010-12-14T23:11:47.637-08:002010-12-14T23:11:47.637-08:00So glad you had a good appt! How awesome to hear ...So glad you had a good appt! How awesome to hear that there's no reason to think Sammie won't run or walk!! That's HUGE. I also love what you said about if she doesn't-so what. I can honestly say I'm finally at that place now with our situation. If Bella never does-so what?! It doesn't define her. It's such a freeing ( I think that's a word!) feeling. I still wonder if JH would help us-we'll see what happens. So glad you had a good trip!Juliehttps://www.blogger.com/profile/08685903839595125054noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-67016412736149044872010-12-13T13:18:58.755-08:002010-12-13T13:18:58.755-08:00oh wow..i want to email you right now! that group ...oh wow..i want to email you right now! that group of undiagnosed kids with the big head, balance issues, hypermobility....that describes my P to a t! his head is like 99th percentile. wow. anyways, another mri tomorrow. i am praying that everything is still a-ok. so glad you went to JH. and so glad you worst fears were put to rest.Kristenhttps://www.blogger.com/profile/09212539609541601723noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-24724916050808616562010-12-13T11:06:48.315-08:002010-12-13T11:06:48.315-08:00so glad you had a really great encouraging appoint...so glad you had a really great encouraging appointment and the Dr quashed some of your fears. Sounds like a great trip!marie clarehttps://www.blogger.com/profile/15102120046107159127noreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-3526352053991460182010-12-13T10:46:10.276-08:002010-12-13T10:46:10.276-08:00So glad that it went so well! It sounds like B is...So glad that it went so well! It sounds like B is a wonderful support for you both, too. :)EHhttp://attorneyatlarge.usnoreply@blogger.comtag:blogger.com,1999:blog-6163766535638871272.post-58796679798914505312010-12-12T20:41:23.911-08:002010-12-12T20:41:23.911-08:00All 3 of you are so brave, so amazing, and so insp...All 3 of you are so brave, so amazing, and so inspiring. Go Sam!!! And GO YOU! I'm so happy things were so positive and you got such good information from the doctor - and know you have lots of people out here supporting you and your family, regardless of the outcome. HUGS to you all!Unknownhttps://www.blogger.com/profile/08550581733029506082noreply@blogger.com